Wednesday, July 25, 2012

Photos from Oahu

I just picked up the 4 rolls of film of almost invasive documentary style photographs that I took during our trip to Oahu. I have yet to convince my mother to let me upload them (she said she looks too tired and doesn't like that she is holding her cell in a lot of the photos)...and I'm also too lazy to scan them right now.

In the meantime, here are some digital photographs.



















I coerced my mom to go to the city (ward shopping center to be exact) so that we could have dinner with my future roommate Laura. Let's just say that driving from Kaneohe to the city isn't my mom's favorite memory.








I think Jewel was crying because she wanted some of my free 7-11 day slurpie-even though mom got a weird mango flavored slurpie. lol




Our host family Greg and Michelle and their wonderful puppies which Jewel loved.
















Wednesday, July 18, 2012

Anat Baniel Method


7/18/13  Wednesday


So much time has gone by since our last post, and our family has done a lot of living, loving and learning.

I have been focusing on being more present with all of my children, especially as the older two prepare to go off to college.  This time together will help our family as we shift into the next season of our lives- living away from each other for the first time.

I want to share about ABM, Anat Baniel Method.
Anat's book is called; Kids Beyond Limits.  This book is a must read because it is full of hope and practical application.  I am loving each page as I dissect and memorize the teachings and lessons shared.

"Movement is life; without movement life is unthinkable"-Moshe Feldenkrais

I only learned about ABM recently and shortly after everything fell into place for Jewel to see a practitioner that does ABM. It all started when I was cleaning one of my client's Villa last month.  She is a doctor and recommended Anat Baniel's book to me.   

I began researching and found Anat's site and videos.  I watched every video that I could find on youtube of Anat Baniel working with special needs children. Her method seemed very organic and holistic. I felt comfortable learning about this method-a stark contrast with how I felt while researching the hyperbaric oxygen therapy.

I am a member of many groups on facebook and so I started asking parents what they thought of ABM? Had they tried it? What were their results?  I then ordered the children's seminar dvd from Anat's website (10hrs long) and ordered her book from Amazon.  While checking the facebook page of cp daily living Michele told me that an ABM practitioner  was coming to Oahu.  Within two days it all came together; purchased three tickets to Oahu (one for me, Jewel, and Makena). I brought Makena along to help and learn, for two is better than one, and I just didn't think I could do it on my own since Gary had to be home with Raven for her GED test. I had enough funds for the 10 sessions / lessons (two a day).  And my sister in law found a dear friend of hers who was willing to put us up and loan his car to us for the duration of the stay.  

We stayed in Kaneohe and the practitioner was in Waimanalo. That side of the island was so beautiful and peaceful. We hung out at the beach in-between lessons and ate peanut butter and guava banana sandwiches, drank lots of water, played and lived slowly.  We shared dinners with our hosts and ate left overs.  The visiting practitioner, VK made the prices very affordable for families.

Going to Oahu I had no ideas, limitations, attachments or expectations. We just went to see if this gentle method could help Jeweliana. I share our journey and path to ABM with joy in my heart, hoping it will help some family.

The sessions / lessons brought calm to Jewel's body, leaving each time with less spasticity and tightness.  I was a bit sad coming back home for there is no support for continued lessons.  It was a bit of the post ABM blues. But today Jewel's P/T who does Myofascial release on her said that she has never seen Jewel's hands so relaxed and her head with such control! Whoop!
Then her O/T said the same thing later that day, adding that Jewel has never weight bared on her hands and knees like she did today! 
Yesterday our chiropractor got to work on Jewel's back for the first time because she tolerated lying on her tummy! :) 

I am so encouraged by these visible improvements.


Will these connections / gains stay? I hope so.

I am still reading Anat's book with diligence and trying to implement all that I learn. Today and yesterday we painted with water colored pencils on her knees and toes, hoping to bring her attention to her body. I am trying to keep it light and fun, with an open mind and full heart.

Thank you Anat Baniel and thank you VK for this gift of learning with possibilities of miracles.
May the lessons of living life to our fullest potential continue, and my prayer is for all children with special needs to be able to get ABM lessons.

Love is always the answer <3

Saturday, June 2, 2012

Here is a link for you to check out; it is all about speech and toys that can help with strengthening and muscle memory.                http://speech-language-pathology-audiology.advanceweb.com/Editorial/Content/PrintFriendly.aspx?CC=12448

Wednesday, May 9, 2012

Vote for Jewel!!!

Vote for Jewel to win a wheelchair accessible van!!!! only 4 days left to vote, so we need EVERYONES help to win!!!!! :-) share with your friends and vote for Jeweliana here: http://www.nmeda.com/mobility-awareness-month/heroes/hawaii/kihei/1997/jeweliana-gadient

Friday, April 27, 2012

Santa' s Red Christmas Bike

One of the highlights of this year was brought by Santa Clause or should I say one of his helpers.
Jewel woke up to a red Rifton trike with a huge gold bow just sitting in our living room on Christmas morning.
"Wow Bikey", was all that Jewel could say.  She just could not believe it, for a bike has been on her list for at least four years.  I think she may have given up on this bike ever arriving.
She needed all the attachments to be able to ride; a new hip adductor, new back rest, extra head and neck support, side panels for the upper body, chest harness.
We found a wonderful physical therapist who was willing to order the extra parts for no charge and we got a 25% discount due to the order being made by a certified therapist who owns a clinic.  You see there is help all around, you just have to look, knock and keep asking until you find the person who is willing to help.  Thank you Heather- you are an angel! <3
Sevenhundredtwentydollars and a few weeks later....  the box arrived with all the parts to keep Jewel in the bike.
Our lovely office lady has allowed us to keep the bike in the electric room, so I do not have to carry it up 37 stairs, thank you Leslie :)
Our friends who are professional bikers gave Jewel a real bike team jearsy to wear on her bike- thanks Heather and Jeremy!  It does make her go fast!
With a lot of trial and error we have figured out how to put her in her "bikey" correctly.  She tends to slip and loose her posture if you don't get it just right.  We take her out, no matter the effort, until we get her in just perfectly.  This will ensure a good ride, keeping form and posture a priority.
The seat was leaving broozes on Jewel's butt  even with a diaper on for padding.  My good friend Liz suggested a gel seat cover and it has been the most affordable solution!  Liz was Santa's helper, since her son out grew the Rifton trike they gave it to Jewel.  Liz you are an angel and absolutely Rock.  This bike has revolutionized our lives.  Jewel can ride on it for an hour now, though she has had to work up to this. She was wearing her SPIO thereputic gloves, which we sent back for a larger size and we can't wait for them to arrive.  It takes two of us to put Jewel in her "bikey" as she calls it.  After she is secure, we hunch over her and work on stretching out her arms to get them to the handle bars.  Since we have been doing this her arms are a lot looser.  It takes thirty minutes of bike riding,  consistent arm stretching to see her body changing, especially her arms getting softer.  It is well worth the effort.  Now Jewel is getting more outdoor time, she gets to see the dogs that come out for their walks.  We tried to take Grace out with us and have decided that it is safer with her at home.  She is too excitable and tends to pull at me almost pulling us down, bikey and all.
We push Jewel on the grass and in the outer perimeters of the tennis courts when no one is playing.  One day she was fussing and crying and I was frustrated because I could not understand her, when out from the other court a gentle man appeared on roller blades.  He wore a smile as his silver hair blew in the wind, with out a word he put his skull candy head phones over Jewel's ears and instantly her upside down smile turned right side up.  She was smiling and happy, he rode behind her on his rollerblades as she was attached to his ipod.  The magic he brought to our day was music.  So I saved up to get her request; "cherry red" skull candy headphones and she uses her sister's ipod and with the help of the store manager of the local sports authority, we purchased a red head band to keep on the head phones!

Serendipity


The other day Jewel said, "I love you", and I said, "I love you too", and she said, "Bikey".
"I love Bikey" and so do we.

Here is the Rifton page for viewing the trike;
http://www.rifton.com/products/mobility/adaptivetricycles/


Wednesday, April 25, 2012

Six-word sentence

Makena brought some magazines home and I was reading The Oprah Magazine, Express yourself /February 2012 / Volume 13, number 2.  Page 126 talks about Larry Smiths challenge to fans inspired by Ernest Hemingway's legendary shortest of short stories ("For sale: Baby shoes, never worn")

Jewel's six-word sentence that describes herself is;

"A super great and awesome girl."  =]

And that you are Jewel,  I am happy to see that you have a great self image!

Mine would be; "We're here to help one another."

What is your story in six words?