12/2/11 Friday
We got our Christmas tree on Thursday.
Jewel and her sisters picked it out.
They are all happy :)
It is in the living room and it smells so good.
We will decorate soon.
It has been a mixed plate day;
Our O/T that used to work with Jewel is visiting the Islands.
It is so good to see her, we miss her so much!
We love you Crystal <3
Today we interviewed an aid who would come into our home to help out with Jewel.
The insurance company set this up.
It was very disappointing.
The candidate, had six months of schooling with first aid and CPR.
She has not worked long in this field.
She works with the elderly and has never worked with pediatrics.
She has never worked with children with cerebral palsy.
I was shocked.
Though the lady was nice, there is no way she could be of a help with no education or experience.
Each member of our family has been daily training over the past 10 1/2 years to be of help to Jewel.
We work with her day in and out.
We are all first aid and CPR -infant/child certified and some have adult certification as well.
We all have been to almost every therapy session, so we can learn and be of better help to Jewel.
How can the insurance think that someone with out specialized training come in and help with our daughter? How can a six month general nurses aid program equip some one to be a care giver to a child with is immobile with cerebral palsy with many other labels?!
The risk is high for aspiration during feeding and water for some one without training.
The risk to hurt Jewels hips is high with out the proper experience, education, understanding, and training.
The stakes are too high.
We have kept vigil over Jewel, keeping her safe, healthy and happy.
Good intentions are not enough.
One bad aspiration leads to infection leads to hospitalization .... not worth the risk!
We want to keep Jewel healthy, happy and medication / hospital free!
I am sorry if I sound ungrateful, it seemed like such a positive possibility for her and us but the gift was not satisfactory.
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