Do not know where the days go or how we got to wednesday already.
Another day in big girlie panties :) Hip hip hooray!! Way to go Jewel and family xoxo
Jewel had a great speech session even though she was very tight. Working on Rs and the word "thirsty", to not sound like "dirty". It is tricky getting the blend "th" then inserting the "s" then "ty". Keep practicing! Jewel does not like to fail and her speech and language pathologyst went to great lengths to explain that it was okay if she did not get it right the first time. Beth is there to help teach Jewel how to say the words she needs to communicate with us. All the speech pathologists have helped in strengthining the facial & mouth muscles. This aids in drinking water, eating and swallowing safely and then come the needed words.
Remember; it is the boring or hard repetitive sharpening of our skills that will ultimately enable us to reach our goals. :) (easy to say but harder if you are on the other end of the sharpening). Her session consisted of the game, Go Fish. the words were all ones with intention to sharpen her "S". Nothing is left to chance, the lessons are planed with attention to Jewel's needs and progress. Beth is amazingly knowledgeable, kind, organized and fun! Thank you Aunty Beth!
She also had a great P/T session, lots of deep myofascial release. (Myofascial release refers to the manual massage technique for stretching the fascia and releasing bonds between fascia, and integument, muscles, and bone. This helped Jewel have a bowel movement after the session. She gets so tight if she is constipated. We occupied Jewel's mind with lining up the Barbies and playing with the Dolphin. Her mind was distracted enough with play for the P/T to do a lot of deep work on her legs. Jewel did not cry, complain or whine. She was playing Barbie. We can endure so much more when our spirits are full of joy! Thank you Carol!
I told Carol that I had not found a blog on any children with CP who are not on meds. She has serviced adults and the pediatric population for a very long time, and she said that Jack and Jewel were the only clients that she has ever met that live with out medication. Wow!
May God bless Jack and Jewel to prosper with good health. May our families keep this vision and may our resolve be strengthened with joy. Each day is a gift, each moment an unfolding petal with the fragrance of Life! Live your life well!
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