Wednesday, May 11, 2011

Happy Girls

5/10/11 Tuesday
We talked about Jewel's desire to dance the Hawaiian dance.
"Hula."  She beams with joy when we talk about the hula.
Jimmy the massage therapist showed Jewel how to do the hula yesterday.
As Jewel lay on his massage table he picked up her hips ever so gently but firmly and showed Jewel how the hips need to travel around the Islands.  Oh boy did she love this!  There are many things I love about Jimmy but my favorite is he never says anything negative or limiting to Jewel.  Yes, he believes that she will be able to ride in the rodeo procession as does he believe that Jewel can dance the hula, thank you Jimmy!!


I believe in manicures. I believe in overdressing. I believe in primping at leisure and wearing lipstick. I believe in pink. I believe happy girls are the prettiest girls. I believe that tomorrow is another day, and... I believe in miracles.-Audrey Hepburn



The big girls are all hubba-bubbing about prom, hair up-dos, high heels, shoes, shopping borrowing prom dresses, and too much hair spray.  Jewel keeps asking her sissies,"what you doing?!"  And half the time they do not know, they are just giggling and having fun.

Left Jewel with out an overnight diaper on, and about 2am she yelled,"no diaper, sorry."
Well accidents are bound to happen.

Jewel chose to stay home and not fund raise since it was, "too hot."
So Makena, Raven and I hit the pavement in a ritzy neighborhood asking for donations towards;1.) HCI Hawaii Canines for Independence, they train service dogs right here on Maui.  Grace, Jewel's dog and sometimes dragon comes from HCI.  Since the girls are into supporting two charities we were raising funds for 2.) Camp Imua as well.  Camp Imua is a free week long camp, for Maui counties school aged special needs population.  This camp has been servicing our children for 35 years and although it has changed in some ways it still remains free to the campers and I hope this never changes.  It is run by teenagers and a handful of adults, it is an amazing experience.  Jewel has gone for the past two years, I am her caregiver and Raven and Makena have been volunteer, this year will be their third year as caregivers.  This saturday there will be a charity walk and all the funds raised for the different charities will be matched by the hotel and lodging industry, pretty sweet!  It is only three miles for the walk and it is nice to be a part of the community and doing our share.  We were so burnt out going from door to door and mostly people with empty pockets were greeting us but there were a few generous gems who kept our spirits up and made it worth while canvasing.  Note to self; give money and a cool glass of water with a smile to the next charity collector who comes by our door, and thank them. 


Remember, if you ever need a helping hand, you will find one at the end of each of your arms.  As you grow older, you will discover that you have two hands, one for helping yourself and the other for helping others.--Audrey Hepburn  

We met our possibly new P/T and only time will tell, he seems nice and gentle.  

The evaluation was non stressful and Jewel seem to like him.   
He brought a article about Pediatric mobility, using standers to position children for success
by Stephenie Labandz, dpt Jan.24 2011 vol 22 no.2 
Advance magazine physical therapy and rehab medicine.  
A very good article, I recommend looking it up. 
Standers are important for children and adults who are not walking.
They say standing helps maintain the whole person.



http://physical-therapy.advanceweb.com/Archives/Article-Archives/Heightened-Awareness-2.aspx

We have noticed that Jewel eliminates and sleeps better when she does at least an hour in her stander.  Our goal is at least 2hrs a day or maybe even twice a day!  They say that supported standing is a pre-gait activity.  So time in Stander first then time in her Gait trainer :)

Nothing is impossible, the word itself says I'm possible! -Audrey Hepburn

2 comments:

  1. I love your attitude! I am thrilled that my article made it from my hands in Minnesota to help a wonderful girl in Hawaii.
    I wish your family all the best.
    Stephenie Labandz

    ReplyDelete
  2. Aloha Stephenie, wow, so wonderful to read your comment!
    Please keep writing, because you are teaching us, parent and therapists alike. Thank you for your article that was so informative, insightful and encouraging.
    Aloha Ivana

    ReplyDelete