4/28/11 Thursday
Mixed plate.
Today was our last occupational therapy session with Crystal. Another wonderful session, we will truly miss her. Makena filmed the session and will post clips at some point. We decided to burn the recordings onto a disk so that the whole family can watch, including Jewel. It will be beneficial to us all, thank you Makena! We discussed getting a weighted vest for Jewel, this will help with weight baring in the chest area. The idea is to keep the ribs down and separation from trunk and torso. We are still looking for the right one to purchase for Jewel. Gold nugget; weight baring is very important in the integration and transition of primitive to functional movements. If you have a young one start today, with the guidance of a good physical and occupational therapist. Jewel is ten and it is still critical for her to weight bare at all times! Occupational therapy focused on hips up and the physical therapist focuses on hips down, a good therapist is worth their weight in gold! Jewel gave Crystal a pink carnation lei with tuberose, Aloha Crystal. Thank you for helping Jewel and teaching us how to better care for her. May your path be blessed with all the love, care and joy you give to others. We love you Crystal xx
All the news on the tornado that swept through the southern states makes me very sad. It puts the little thorns in my life into a different light. My sympathies are with those who lost loved ones and their homes.
If you are looking into purchasing a piece of equipment for yourself, or your child check out Prime Engineering
http://www.primeengineering.com/pages/mainPages/aboutUs.html
We got Jewel's super stand, her stander from them.
This piece of equipment helps her stand up with all the straps to keep her in place, it has helped her bones, weight baring, spine stay straight and helped with her eye tracking, since upright vision gives more distance and perspective than the lower depth of field on the floor. I can not say enough good stuff about this piece of equipment and the company.
We will be getting our gait trainer; Kid Walk, from them as well.
They are customer friendly, they care and will customize a piece for you and trouble shoot over the phone with you. They are brilliant, amazing, creative and full of heart!!
When you call them you will always be able to talk to someone, they return calls and e-mails, bottom line is they care! Thank you Prime Engineering staff and owners, we appreciate your excellent service and your big hearts! xx
From the film maker of including Samuel;
http://www.includingsamuel.com/home.aspx
Please check out this video clip, approximately 7 minutes.
It is 20 youth talking about how we as a society need to include the special needs,
http://www.youtube.com/watch?v=92zvN0tmFKY&feature=player_embedded
"I am Norm"
The youth dialogue that is recorded is wonderful, it gives me hope!
11pm the big girls and I were watching the beginnings of the Royal wedding. I remember when Lady Di got married, my mother let me stay home and watch it with her. I did not stay up past midnight but I did enjoy watching all the hats and suits. Listening to the commentary while sipping throat coat tea, my right gland is swollen and looks like I got the mumps. The magic of a fairy tale wedding was still present.
Friday morning and Jewel woke up with another dry diaper!!! Yeah Jewel!
No comments:
Post a Comment